Our patient involvement forum

Our dedicated patient involvement forum is made up of people affected by cancer from diverse backgrounds.

Overview and remit

The patient involvement forum contributes to programme office-led projects in our network. It brings together patients and people affected by cancer from across the UK to feed into and discuss how best we can progress the ambitions of delivering patient-centred research across our network.

We welcome everyone affected by cancer. The group includes both members who are familiar and experienced with our network to people who are new to clinical research and patient involvement.

The group meets virtually, four times per year (every three months).

Focus areas

Shaping network-wide activity: offering strategic input on our initiatives, resources, and priorities to ensure patient perspectives are embedded across the network.
Strengthening patient involvement: contributing to discussions on how to grow, diversify, and support patient involvement across our network, including developing approaches and resources for new representatives.
Peer support and shared learning: providing a space for patient representatives to connect, exchange experiences, and learn from one another.
Advising early-phase trial teams: offering high level, UK wide patient insight to support trial design, communication, and patient centred decision making.

Meet our forum members

Araya

Dave

Elspeth

Julie

ECMC patient involvement forum member Liz.

Liz

Rita

ECMC patient involvement forum member Tim.

Tim

How to get involved

We’re not currently recruiting for this forum, but we welcome enquiries for future involvement.

Useful resources

Find a clinical trial

Use the Cancer Research UK search page to find a trial by cancer type, drug name or trial name.

Cancer Research UK Involvement Network

This network helps shape and influence the work that Cancer Research UK does through various activities.

Teenage and Young Adult Trials Advisory Group

A dedicated forum for discussing complex teenage and young adult patient cases and identifying the most appropriate treatment or trial referral pathways.

Opportunities for public involvement

The National Institute for Health and Care Research provides opportunities for members of the public to get involved in research

A guide to support those involved in patient and public involvement activities

A clear guide to key terms, with an overview of early‑phase cancer research and how it differs from later phases.

TYA research website

Useful age-appropriate learning resource to share with your teenage and young adult patients to help demystify clinical trials, biobanking and genomics.