JING resources: Patient and Public Involvement

Patient and Public Involvement is when patients or members of the public use their experiences of cancer to help shape research. so that it is carried out with or by patients, rather than to or for them. You can consult, collaborate or partner with patients at all stages of the research cycle.

Examples of involvement include, but are not limited to:

  • Defining your research questions
  • Planning and designing your research
  • Developing patient facing documents
  • Monitoring and disseminating progress

Resources